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15(1)2025

A phenomenological study of the lived experiences of families of children with autism in the Philippines


Author - Affiliation:
Benedict Francisco Reyes - Central Luzon State University, Nueva Ecija
Peachy Gilledo Domingo - Central Luzon State University, Nueva Ecija
Corresponding author: Benedict Francisco Reyes - benedict.reyes@clsu2.edu.ph
Submitted: 07-02-2024
Accepted: 20-05-2024
Published: 11-10-2024

Abstract
Based on the data provided by the Autism Society of the Philippines (2018), it is estimated that around 1.2 million Filipinos, constituting 01 out of every 100 individuals, are affected by autism. This high prevalence poses significant challenges, particularly for parents who are raising children with autism, as they grapple with the lifelong developmental issues associated with the condition. Recognizing the pressing need for support, the Philippine Senate has taken notice of this matter, and senators have proposed the establishment of a National Center for Autism (Torregoza, 2023). In light of this context, the present study aims to delve into the lived experiences of family members, including parents, grandparents, and other relatives, who provide care for children with autism. The study aims to capture the critical experiences of families raising children with autism, focusing on stress, burden, ambivalence, and hope through qualitative interviews. By analyzing narratives within the framework of intensive motherhood ideology, this paper delves into caregivers’ lived experiences and how they relate to these themes. The study incorporates seven participants whose interviews are recorded and transcribed. Codes are then derived from the transcriptions, and subsequently, themes are developed. The findings of the study reveal the resilient sense of hope that families maintain despite the numerous struggles, burdens, and ambivalent emotions they encounter in their journey with autism.

Keywords
children with autism in the Philippines; coping strategies; family stress; Filipino families; phenomenology

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Cite this paper as:

Reyes, B. F., & Domingo, P. G. (2025). A phenomenological study of the lived experiences of families of children with autism in the Philippines. Ho Chi Minh City Open University Journal of Science – Social Sciences, 15(1), 137-151. doi:10.46223/HCMCOUJS.soci.en.15.1.3235.2025


References

Aguilar, M., & Ponde, M. (2019). Parenting a child with autism. Jornal Brasileiro de Psiquiatria, 68(1), 42-47.


Autism Society of the Philippines. (2018). From awareness to action. http://www.autismsocietyphilippines.org/p/autism-is-lifelong developmental.html


Barlow, K., & Chapin, B. L. (2010). The practice of mothering: An introduction. Ethos, 38(4), 324-338.


Benderix, Y., Nordström, B., & Sivberg, B. (2007). Parents’ experience of having a child with autism and learning disabilities living in a group home. Autism, 10(6), 629-641.


Carr, T., & Lord, C. (2016). Analysis of the lived experiences of Filipino parents of children with ASD. Journal of Autism and Developmental Disorders, 46(4), 1380-1393. https://doi.org/10.1007/s10803-015-2672-5


Catubigan, R. V. (2023). Mothers’ voices on autism spectrum disorder: Leaning towards sustainable inclusive education in Maragusan, Philippines. Discourse and Communication for Sustainable Education, 14(1), 57-71. https://doi.org/ 10.2478/dcse-2023-0006


Costa, A. P., Steffgen, G., & Samson, A. C. (2017). Contributors to well-being and stress in parents of children with autism spectrum disorder. Research          in Autism Spectrum Disorders, 37(1), 61-72. https://doi.org/10.1016/j.rasd.2017.01.007


Dunn, M. E., Burbine, T., Bowers, C. A., & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37(1), 39-52.


Ennis, L. R. (2014). Intensive mothering: The cultural contradictions of modern motherhood. Demeter Press.


Furrukh, J., & Anjum, G. (2020). Coping with autism spectrum disorder in Pakistan: A phenomenology of mothers who have children with ASD. Cogent Psychology, 7(1728108), 1-16. https://doi.org/10.1080/23311908.2020.1728108


Gajardo, C., & Oteíza, T. (2017). The ideological construction of mother identity in the discourse of four women of the lower socio-economic group from Santiago, Chile. Discourse & Society, 28(2), 142-161.


Hall, H. (2011). The relationships among adaptive behaviors of children with autism, family support, parenting stress and coping. Issues in Comprehensive Pediatric Nursing, 34(1), 4-25. https://doi.org/10.3109/01460862.2011.555270


Hays, S. (1996). The cultural contradictions of motherhood. Yale University Press.


Lo Bosco, M. C. (2021). Autism ‘super mums’ affectivity as political capital in special mothering and autism advocacy. Medicine Anthropology Theory, 8(1), 1-25. https://doi.org/10.17157/mat.8.1.5092


Mabena, M. N., Kritzinger, A., & van der Linde, J. (2015). Parents’ journey into the world of autism. South African Journal of Communication Disorders, 62(1), e1-e9. https://doi.org/10.4102/sajcd.v62i1.101


Mancil, G., Boyd, B., & Bedesem, P. (2009). Parental stress and autism: Are there useful coping strategies? Education and Training in Development Disabilities, 44(4), 523-537.


Manor-Binyamini, I. (2016). Positive aspects of coping among mothers of adolescent children with developmental disability in the Druze community in Israel. Journal of Intellectual & Developmental Disability, 41(2), 97-106. https://doi.org/10.3109/13668250.2015.1129665


McStay, R. L., Dissanayake, C., Scheeren, A., Koot, H. M., & Begeer, S. (2014). Parenting stress and autism: The role of age, autism severity, quality of life and problem behavior of children and adolescents with autism. Autism, 18(5), 502-510. https://doi.org/10.1177/1362361313485163


Moustakas, C. (1994). Phenomenological research methods. SAGE Publications.


Pepperell, T. A., Paynter, J., & Gilmore, L. (2018). Social support and coping strategies of parents raising a child with autism spectrum disorder. Early Child Development and Care, 188(10), 1392-1404. https://doi.org/10.1080/03004430.2016.1261338


Ross, L. R. (2016). Interrogating motherhood. Athabasca University Press.


Siklas, S., & Kems, K. A. (2007). Diagnostic experiences of parents of children with autism: A survey of parental perspectives. Research in Developmental Disabilities, 28(1), 9-22.  https://doi.org/10.1016/j.ridd.2005.12.003


Simangunsong, G. H. M., Fitrianingrum, I., & Pratiwi, S. E. (2023). Parents’ acceptance of children with Autism Spectrum Disorder (ASD) in Pontianak City. Jurnal Sains Psikologi, 12(1), 28-38. https://doi.org/10.17977/um023v12i12023p28-38


Smith, J. A., Flowers, P., & Larkin, M. (2009). Interpretative phenomenological analysis: Theory, method and research. Sage.


Torregoza, H. (2023). Alarmed over rising cases, senators push for bill creating government funded center for autism. Manila Bulletin. https://mb.com.ph/2023/04/05/alarmed-over-rising-cases-senators-push-for-bill-creating-gov-t-funded-center-for-autism


Walga, T. K., & Yohannes, T. (2023). Experiences and perceptions of parents raising children with autism. https://doi.org/10.21203/rs.3.rs-2502215/v1


Woodgate, R. L., Ateah, C., & Secco, L. (2008). Living in a world of our own: The experience of parents who have a child with autism. Qualitative Health Research, 18(8), 1075-1083. https://doi.org/10.1177/1049732308320112



DOI: https://doi.org/10.46223/HCMCOUJS.soci.en.15.1.3235.2025
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