A phenomenological study of the lived experiences of families of children with autism in the Philippines

Abstract

Based on the data provided by the Autism Society of the Philippines (2018), it is estimated that around 1.2 million Filipinos, constituting 01 out of every 100 individuals, are affected by autism. This high prevalence poses significant challenges, particularly for parents who are raising children with autism, as they grapple with the lifelong developmental issues associated with the condition. Recognizing the pressing need for support, the Philippine Senate has taken notice of this matter, and senators have proposed the establishment of a National Center for Autism (Torregoza, 2023). In light of this context, the present study aims to delve into the lived experiences of family members, including parents, grandparents, and other relatives, who provide care for children with autism. The study aims to capture the critical experiences of families raising children with autism, focusing on stress, burden, ambivalence, and hope through qualitative interviews. By analyzing narratives within the framework of intensive motherhood ideology, this paper delves into caregivers’ lived experiences and how they relate to these themes. The study incorporates seven participants whose interviews are recorded and transcribed. Codes are then derived from the transcriptions, and subsequently, themes are developed. The findings of the study reveal the resilient sense of hope that families maintain despite the numerous struggles, burdens, and ambivalent emotions they encounter in their journey with autism.